We need your help to fundraise for CHARGE Syndrome Canada. With the Board of Director's approval, you can contribute in a variety of ways by fundraising. We suggest hosting a BBQ in your community, in co-operation with a grocery store. Please drop Cydne a line at 780-288-4649 to find out more!
Cydne has BBQ's booked in the Edmonton area throughout the summer. If you are in the area, please give her a hand to volunteer!
The National Canadian Deafblind and Rubella Association is sponsoring the 7th conference on deafblindness to be held in Winnepeg September 21 - 24, 2006. It has chosen "Celebrating Potential" as the theme. The conference has a wide range in audience, and presentations will be geared to both parents and professionals in many disciplines. We are hoping for a contingent of those with an interest in CHARGE Syndrome to attend. Please contact CHARGE Syndrome Canada if you are interested in co-ordinating transportation. For more information on the conference visit http://www.cdbra-mb.com
The Canadian Organization for Rare Disorders (CORD) has a new logo! Look for more from this organization soon, especially as they report on bringing rare disorder groups together to network and develop working partnerships. They also plan to host an e-news and information system, which will give those with rare disorders access to the most recent news stories from around the globe.