CHARGE Syndrome Canada Newsletter SPECIAL EDITION 2007 Vol. 1 No.15 © copywrite |
Carnitine deficiency in CHARGE Syndrome
International CHARGE Syndrome conference summary
Dr. van Dijk updates on Russian research
Behaviour-Boarderline Personality Disorder
Past Edition of the Newsletter
Events and Announcement links:
February 20 - 23 2008
Huntsville, ON
"Rare Disease Day"
February 29th, 2008
"Recognizing and building on strengths and abilities"
February 12th, 2008
Alberta Children's Hospital
Calgary, AB
February, 2 ,2008
Vancouver, BC
"A Global Community of Communication"
July 2 - 6
Vancouver
Raising CHARGE Syndrome Awareness
New website links:
As digital video technology grows, we now have access to links we cannot let you miss! Robert Borum from the US invites us into his world through the website of his "two kids with CHARGE Syndrome".
Adam Campbell, post-graduate student in e-journalism at Loyalist College in Bellville has chosen CHARGE syndrome for his project. Visit these three links:
Loyalist College EJournalism You Tube Site.
These will be placed in our "Links and Resource" section for future reference.
We would also like to share with you a new resource booklet called, "Making Faces: Logan's Cleft Lip and Palate Story" available from "About Face".
Two individuals with CHARGE are preparing for a book of life-stories from individuals with CHARGE. Contact them today with your page!
CNIB announces an information website about lack of coverage for a new drug for age-related macular degeneration. !
As we move into 2008, we are confident that membership will grow and our networking will enhance the lives of those living with CHARGE, and other similar rare diseases. Please join today for 2008!
Ann Gloyn, Education Specialist
CHARGE Syndrome Canada Board of Directors
fax 519-758-9919
newsletter submissions welcome - please send to ADMIN@chargesyndrome.ca