CHARGE Syndrome Canada
Newsletter
Winter 2007
Vol. 1 No.13 © copywrite
Dr. Blake's presentation brief from the National CHARGE syndrome workshop
Research studies need participation
Developing an auditory training program
Past Edition of the Newsletter
"Dear Dr. Kim"
Letters on urinary issues...the subject continues
By the volume of responses, we know that toilet issues are a real concern for parents. As the child moves into the early teens, the concern is greater because the child may have visably grown, and expectations increase.
Children and young teens are able to enjoy activity-based programs and communty outings despite being incontinant, needing to wear diapers or have frequent toileting stops. Concrete learning should not be impeded because of toileting difficulties and the program should fit the needs of the child. As far as skill training, there is no harm in trying to develop further communication around toileting needs.
Here is an interesting observation that was submitted. The child has bladder reflux and under-developed genital anatomy.
"...when he sits on the toilet, he will bang the back of the toilet seat against his back. Only when he does this does the urine seem to flow. If he is on the industrial-type toilet, urine will release only if he presses his back hard against the bar at the back of the toilet that holds the handle, and his legs are in a "spread-open v-position". Could this input somehow assist awareness of needing to toilet?
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