It has been an exciting and busy year being President of CHARGE Syndrome Canada, as well as being your Alberta representative!  The focus for 2005 has been on fundraising.  Fundraising was necessary in order that the items detailed in our action plan could be realized. The board of directors have an annual budget which helps to determine what funds would need to be raised in order to meet our mandate. 

As the Alberta representative I am pleased to report that with the help of family and friends who volunteered their time, Alberta has raised close to $8,000 for CHARGE!  Please visit the Alberta report for more details.

As President, I have made many contacts with Alberta organizations that represent individuals who are deaf, blind, visually impaired, or deafblind.  Many are interested in working with us, both on a National and Provincial level. As new ideas are presented, I am looking forward to following up with these in the coming year.

The board of directors will be looking at establishing an Action Plan for 2006.  Your input as members will be essential in determining the direction of your organization.  Please send your ideas or concerns as soon as you can to info@chargesyndrome.ca

As we move into the New Year, I want to wish all of our membership, supportive professionals and organizations health and happiness throughout 2006.

Cydne Park, President

When my son was born, he was diagnosed with "CHARGE Association".  How is this different then "CHARGE Syndrome"? <answer>

As a STUDENT with CHARGE SYNDROME, I have many things to carry between classes:  books, my lap top, my water bottle, my lunch. I was using a back pack.  I live with pain most of my life, but more recently my back is very sore.  The doctor believes some of the vertebrae have become immobile and I need physiotherapy. Is there anything you can suggest?<answer>