We would like to make contacts aware of the gene study taking place in Canada. IT IS IMPORTANT TO BE INVOLVED! Dr. Blake's follow-up studies with young adults is also very important in order that future health issues can be addressed early on. Inquire about participating.

As always, Dr. Kim Blake is available to answer your questions in her regular edition of "Dear Dr. Kim".  We welcome all submissions, or questions   for our other experts as well.   Please click on the links to the left for the feature articles; the links below for the Province reports; and the links to the right for our columns.

Province Reports:

(each section- click the links for more information)

HIGHLIGHTS OF APSEA CONFERENCE ATLANTIC PROVINCES SPECIAL EDUCATION AUTHORITY vision teacher's conference "Times and Tides"

OTTAWA - ONLINE CONSULTATIONS WITH THOSE WHO HAVE DISABILITIES    <click here for details>

A BIG THANKS TO THE TOWN OF DEVON, ALBERTA...HOME OF CHARGE SYNDROME CANADA'S HOME OFFICE for the "Meet and Greet" during the

Annual General Meeting

My daughter Holly is 24 and has CHARGE Syndrome. She has problems with her toileting skills due to constant constipation.  She recently had a cat scan of her intestinal tract and it appears to be normal.  Although they did discover she has no uterus or ovaries.  Have you found this to be true of other CHARGE Syndrome girls? 

click here for answer

From Miami conference: - poster session -ORAL SENSITIVITY AND FEEDING ISSUES

"Early oral sensory experiences and feeding development in CHARGE syndrome" will be published in the next issue of the journal of Dysphagia

(Vol 20, No. 2)

Cindy Dobbelsteyn

Can someone recommend a software program that is geared toward children with a hearing impairment? John has a touch screen for the computer and we have a few programs which are good for cause and effect. He is getting nothing from them auditorily.  I would love to find a program which has some sign language.click here for answer