CHARGE Syndrome Canada
Newsletter
Summer 2006
Vol. 1 No.11
Genetic Alliance Conference Review
"Martial Arts Parents" to international tournament
President's Message:
We have an exciting year ahead, with our 2nd National CHARGE Syndrome
workshop to take place on October 21, 2006. We have the good fortune of
Conny VanRavenswaaij coming from the Netherlands to present research
and answer questions for our families, and anyone else who has an interest
in CHARGE syndrome. REGISTER EARLY as there may be limited space.
Please check the website as there are some new faces on our Board of Directors.
After much consideration, I accepted the offer to serve as President for
this fiscal year. Cydne, our Past President, will be going to Greece this fall, and so hopes to share with us some highlights at a later date.
Individuals with CHARGE are still keen on having CHARGE Syndrome Canada host
a "mentorship camp", and so plans in this direction will take place this year. We hope
you can get involved and volunteer this coming year!
Ann Gloyn, Education Specialist
President, 2006 -07 fiscal year
newsletter submissions welcome - please send to info@chargesyndrome.ca