OUR GROUP'S HISTORY
In July of 2002, a group of interested individuals met in Ottawa at Carleton University. Most of these people had been working for sometime towards a common goal of formalizing a CHARGE Syndrome group in Canada.
During this meeting, a Mission and Mandate statement was drawn up, methods for achieving the goals set out were discussed, an executive was elected by the board of directors, and plans were set in place to meet again in December of 2002 to discuss progress. It was decided that the group would be called CHARGE Syndrome Canada.
We initially partnered with the Canadian Deafblind & Rubella Association NB/PEI Chapter, who agreed to be our sponsors. In February 2003, we became our own official non-profit corporation and since that time have been working hard across Canada. Our first national CHARGE Syndrome workshop in Toronto, October 2004, was a great success. In fall 2004 we moved head office from New Brunswick, into the province of Alberta. Early in 2005 we became a registered charity. We held two more successful conferences, one in Toronto with a number of parents and professionals in attendence, and one in Alberta. The numbers of those who would become aware of CHARGE syndrome have grown. The organization is no longer active due to lack of volunteers and lack of funding.
PROFESSIONAL ADVISORY COMMITTEE
In the 2005 Annual General Meeting, membership of CHARGE Syndrome Canada voted to set up a Professional Advisory Committee for CHARGE Synrdome in Canada. Heading up this endevour across Canada is one of our founding members and former board member, Dr. Kim Blake. Others include Dr. Prasad, London Health Science Center, Dr. Lyle McGonigle, Dr. Bamforth, and Dr. Brian Lowry from Alberta.
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