CHARGE Syndrome Canada Newsletter

                                                            Dear Dr. Kim Column (cont.)

Dr. Kim Blake Presentations:

28th Anual Conference of the Canadian Association of Speech Language Pathologists and Audiologists.  Oral Sensory Experiences and Feeding Issues in CHARGE Syndrome.  Marche DM, Dobblesteyn C, Rashid M, Blake KD, May 2003.

Budden KD, Vincent N., Wakefield S, Mann K, Murphy J.  A Structured Communication Adolescent Guide:  Assessment of Reliability  & Validity.  Proceedings of the 80th Annual Meeting, Canadian Paediatric Society (CPS).  June 2003.  www.cps.ca

Lawand CMD, Prasad C, Graham JM, Jr., Blake, KD.  The Cranial Nerve Anomalies of CHARGE A/S.  Proceedings of the 80th Annual Meeting, Canadian Paediartic Society (CPS).  June 3003.  www.cps.ca

13th DbI World Conference on Deafblindness International (DbI) Conference hosted by the Canadian Deafblind and Rubella Association (CDBRA).  Mississauga, Ontario, August 5-10, 2003.  Website:  www.dbiconferencecaada.com

Puberty and Growth in CHARGE Assocation/Syndrome and "The Incidence and Prevalence of CHARGE Association/Syndrome, Mississauga, ON, August 2003.  Abstracts and Presentations.  "The Central Nerves of CHARGE Association/Syndrome" and  "CHARGE into the Adolescent and Adult Decades."

Invited Speaker:

Grand Rounds IWK Health Centre.  Videoconference CHARGE Syndrome entitled, "CHARGE into 2004 The Adolescence and Adult Decades".  February 2004.

CPSP Genetic Concurrent Session at the Canadian Paediatric Society's (CPS) - Surveillance helping Parents wtih Orphan Genetic Disorders, 80th Annual Meeting of the Canadian Paediartic Society, Calgary June 18-22, 2003.  Website:  www.cps.ca

The 6th International CHARGE Syndrome Conference.  Holiday Inn-Independence, Ohio, July 25-27, 2003.  Website:  www.chargesyndrome.org  Presented Workshop on "Puberty in CHARGE" and "Endocrine Issues in CHARGE".  Speaker at the Behavioural Symposium on CHARGE Syndrome.

Congentially Deafblind Persons with CHARGE Association, Nordic Staff Training Centre for Deafblind Services 4 day workshop.  Videoconference on CHARGE into the Adolescent and Adult Decades and speaking on the general issues of CHARGE.  Dronninglund Castle, Denmark.  December 2003.  www.nud.dk

APSEA April 23 to 25th 2004.  Disabilities 2004 Annual Parent Workshop.

CHARGE Syndrome:  Parents as Partners Workshop; Hospital for Sick Children, Toronto, October 15/16 2004.  "Research in CHARGE Syndrome" sponsored by:  CHARGE Syndrome Canada; Canadian Deafblind and Rubella Association, NB/PEI Chapter: CHARGE project; Hospital for Sick Children Foundation; and the Hosptial for Sick Children Heatlh Information and Promotion Center.

APSEA May 13 to 15th 2005.  Canadian Vision Teacher's Conference.  Presentation "Children with CHARGE."

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