Hello,
welcome to CHARGE Syndrome Canada's online home. Thank you for taking the time to visit. I hope
you find the site to be informative. Please select any one of the
titles of interest to take you through the site. Pour un message
en français, s'il vous plaît déclic ici
"CHARGE
is not an Association, but a Syndrome...it is characterized by very
specific developmental anomalies ...of the optic vesicle, otic capsule,
midline CNS structures, and upper pharynx...which result from abnormal
differentiation, setting, interaction, and migration of neural crest
cells...which extends from the third to ninth week (gestation).
- Dr. Alain
Verloes, Clinical Genetics Unit, Hopital Robert Debre Paris, France
"CHARGE
syndrome can now be considered the leading cause of deafblindness
in infants and children", although there are differences in the
severity of the expression of clinical features
- Dr. Sandra
Davenport, International Conference on CHARGE, 2001
"Once critical
medical issues have been addressed, a variety of therapy utilized,
assistive and technological devices prescribed, and the consideration
given of specialized educational methods and techniques --many children
catch up on developmental milestones and all become contributing
members of society."
-Ann Gloyn,
Education Specialist, International Conference on CHARGE, 2003
Ann L. Gloyn
